Author Archives: niveditasengupta

When will Mamma come back home? Mamma will not go. Medha will come with Mamma. ….these have been coming regularly from my 31 year old daughter with Autism, since last 4-5 months. When she was small, we spent months to train her to stay without me for even just a couple of hours… Like manyContinue reading “Togetherness and Fear Ch-9”

She held my hand around 2 a.m. and it was burning hot. I sprang up, grabbed the thermometer, requested her to open her mouth gently as I slipped in its tip under her tongue. Thermometer started beeping much quicker than I expected….and read 103. 1 degrees Fahrenheit. Any fear is larger when it’s night andContinue reading “Having faith in whom you love the most…..”

Just like the ritual of visiting a boutique with dresses on sale or going to take a look at sports shoes when they offer 40 to 50 % discount… Medha tried using the same logic! She sounded adamant to go to the car showroom and buy Innova on sale!!!! We sat down to pen downContinue reading “Innocence and Simplicity…. I want to buy Innova!”

My head reminds me often that she had lived her life; seen her grand daughter settle in the best way she could, grandson going to a good college! My heart still cries out… Maa but where are you?  All of us lose a parent in some point in life and go through this pain; weContinue reading “Six months of understanding and getting familiar with the life without Maa around!”

Awareness is the first step followed by acceptance, be it GRIEF or the struggle to come out of the ‘WELL of MISERY’. No matter how knowledgeable we may be, practical or rational we are known to be, when struck by grief, it can be a battle we start fighting. The more we try to avoidContinue reading “Awareness and Acceptance”

Coming to terms with Maa’s death…. Everyone needs to leave this world  some day sooner or later, fact of life, I know and all know! Sooner we accept the death of a person, close to us…. easier for us to come out of pain, I know and all know! An ailing old person gets relievedContinue reading “Losing Maa”

Chapter 3 Learnings are ongoing…. just like change it is also constant! Autism faces sensory issues, which lead to fear, frustration, anxiety and also aggression at times. Other than therapies I firmly believe in exposure and more exposure, counseling again and again…..patience and patience. Medha earlier found it tough to walk on wet floor. InContinue reading “Learnings are mutual- New”

Chapter 2 I too have my preferences…I too want to put my foot down and fulfill my wishes….my small wishes. We realize at certain point in life, not once but several times that…. less is enough or may be more. We do not require to run to SALES or buy something just for pleasure. CleaningContinue reading “Dil hai Chota sa…chhoti si ashaa”

‘I know you my child, your thoughts, feelings, worries and fears….we too feel the same way! We too can’t always explain always a discomfort and the cause for it!’ She is different in her ways of expression, may not also understand the reason behind a situation or a particular behaviour. But her feelings  are asContinue reading “Chapter 46”